FAQ

Sunrise-Tourette FAQ

Maintained by Nicole Hardin for Sunrise Tourette, Inc.

This FAQ may be freely distributed, provided it is not modified in any way.

All posts on the Sunrise-Tourette mailing list are copyright by their authors, and may not be reproduced in any manner without express permission of the authors.

WHAT IS Sunrise-Tourette?

Sunrise-Tourette is a private, closed, moderated mailing list consisting of well over 100 participants which provides support and personal experience-sharing to people who have Tourettes Syndrome and other, associated syndromes, including Obsessive/Compulsive behaviors, Attention Deficit/Attention Deficit Hyperactivity, autism, or PDD.

Any and all topics related to TS, living with TS, medications, education, jobs, dating, personal experiences, medical research, associated neurological and other problems (particularly OCD and ADHD,) and diagnosing TS are welcome here. Humor is especially appreciated.

The list was originated as a component of P.O.V. Interactive, a "model project designed to explore the potential use of on-line technologies to transform television into a catalyst for lively and thoughtful

interchange." P.O.V. is a U. S. Public Television non-fiction film series, which produced an excellent program about life with Tourette Syndrome produced by Laurel Chiten around the story of photojournalist

Lowell Handler, both of whom have TS.

Non-broadcast cassettes of the program are distributed by New Day Films (22-D Hollywood Avenue, Hohokus, NJ 07423, phone 800-343-5540 fax 201-652-1973).

The beginning purpose of the list was a dialogue based on the TV program "Twitch and Shout" - it has since grown into a community of people who face the daily challenges of living with Tourette Syndrome.

The list was moderated and owned by Sunrise Support, Inc and administered by Jacqueline Aron, R.N. until her death June 17, 2005. At that time, Nicole Hardin created a new corporation, Sunrise Tourette, Inc. in order to continue Jacqueline Aron’s work.

THE LIST IS AVAILABLE IN DIGEST FORM TOO.

and edit your personal settings. One setting is TYPE, where you may choose individual email, digest in text, digest in MIME, digest in index form (headings only - retrieve individual messages), or set to no mail (read on the web or going on vacation). You may also unsubscribe from your personal page.

Special permission may be granted on an individual basis to receive both the digest and the list. (at different addresses) Please write the moderator to obtain this permission.

WELCOME FROM Niki Hardin

I would like to welcome all the new members.

It is always wonderful to see new names here. I daily give thanks also for the "old guard" who have been here forever, and are so helpful in terms of answering questions and telling people their own experiences and how they personally have dealt with the issues you new members are now facing. There is really a wealth of knowledge here for all you to absorb. You will also find a lot of support here.

Here we speak the unspeakable, and having taken the risk of doing so, find so often several others chiming in saying "me too." There really is nothing you can bring up here that someone here has not experienced before you, either as a parent or themselves. Feel free to tell us how you really feel. Most of us have felt that way too. Many new members express an extreme feeling of relief on joining us, and a sense of finally being in a place where they are understood at a deep level, a feeling of "coming home." I hope all of you will come to feel that way too.

By way of brief introduction, my name is Niki, and I moderate and own this list. I am an adult with TS/OCD/ADD etc, and I am the mother of a 35-year-old son who also has ADD/OCD and mild ticcing. I am a computer analyst, and I also administer the list. I have a B.S. in Information Systems and have administered and programmed various medical systems over the past 20+ year.

LIST RULES AND ETIQUETTE:

The TS list is first and foremost a support group. Our desire is to provide advice, humor, successful role models, and factual information about TS and its associated neurological syndromes. For this reason, we ask the following:

*Maintain the privacy of all list members.*

In order to continue the open and free exchange that makes the TS list a safe space for TSers to discuss delicate and sometimes embarrassing situations, as well as to vent their feelings when needed, we must continue to maintain the privacy of our members.

Please do not share personal information about individuals posting on the list without their express permission (that means ask someone before you go talking about them or showing their posts to anyone, and be sure you get a reply from the original author.) Reposting list material or printing list mail and distributing it to non-members is grounds for being removed from the list, as is revealing personal info with regard to who is on the list, why they are here, or most important, that they may have a particular diagnosis. These are strong rules we have in place to protect the privacy of the members so they feel free to speak here and know they are safe.

*Do not post private email to the list without clearing it from the authors first.*

This is standard Internet etiquette, and particularly important here.

*Be nice. *

Disagreement is fine. Personal attacks or judgmental statements are not. Please frame any controversial discussions in terms which stick to the facts, not the personal. We do not want to become a forum for flame wars. Attack the idea if you wish, but never the person.

*Avoid politics and religion if possible*

TS list members come from all parts of the world, religions, political persuasions, and walks of life. Please respect the differences between us. If you wish to discuss politics and religion with other list members, kindly take it to private email. Thanks.

TIPS FOR KEEPING THE MAIL VOLUME DOWN

The TS list has lots of posts, so we ask the following:

Please quote only the relevant parts of a post in your reply. Posts that contain over 30 lines of quoted text, will be returned to the sender by the server.

If the topic wanders off onto a new course (which happens often) please change the thread subject as follows:

TS Humor (was TS kids camp)

If possible, specify individuals to whom you are replying (example: TS Humor-for Jackie), and if you are replying to several notes, try to consolidate them into one larger reply instead of several individual replies.